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Ethics in Participatory Research for Health and Social Well-Being: Cases and Commentaries


Ethics in Participatory Research for Health and Social Well-Being: Cases and Commentaries

Paperback by Banks, Sarah (University of Durham, UK); Brydon-Miller, Mary (University of Louisville, USA)

Ethics in Participatory Research for Health and Social Well-Being: Cases and Commentaries

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ISBN:
9781138093430
Publication Date:
14 Aug 2018
Language:
English
Publisher:
Taylor & Francis Ltd
Imprint:
Routledge
Pages:
218 pages
Format:
Paperback
For delivery:
Estimated despatch 22 May 2024
Ethics in Participatory Research for Health and Social Well-Being: Cases and Commentaries

Description

Participatory research is well-established as an approach involving people with a direct interest in, or experience of, the issue being studied in carrying out research. However, it raises unique and challenging ethical issues. Traditional concerns with respect for the rights to confidentiality, consent, privacy and protection of 'research informants' do not translate easily into participatory research. Boundaries between researchers and those researched are often blurred; research trajectories may be emergent and unpredictable; and major ethical issues revolve around partnership, power, equality and respect for diverse knowledges. The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors. Focusing on developing ethical awareness, confidence and courage to act in ethically challenging situations in everyday research practice, this book is an invaluable resource for all participatory researchers.

Contents

Chapter 1. Ethics in participatory research Chapter 2. Partnership, collaboration and power Chapter 3. Blurring the boundaries between researcher and researched, academic and activist Chapter 4. Community rights, conflict and democratic representation Chapter 5. Co-ownership, dissemination and impact Chapter 6. Anonymity, privacy, and confidentiality Chapter 7. Institutional ethical review processes Chapter 8. Social action for social change

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